International Kidney Biopsy Survey 1 link

• Glomerular disease frequencies by race, sex and region

Pediatric 2 links

• Averting the legacy of kidney disease—focus on childhood
• Evolving Epidemiology of Pediatric Glomerular Disease

Glomerular Disease Study & Trial Consortium 3 links

• Home Page
• For MDs
• For Patients

IgA Nephropathy Foundation 1 link

• By patients, for patients

International Society of Glomerular Disease 1 link

• Home Page

KDIGO 2021 1 link

• Clinical Practice Guideline for the Management of Glomerular Diseases

KDOQI 1 link

• KDOQI US Commentary on the 2021 KDIGO Clinical Practice Guideline for the Management of Glomerular Diseases

NephCure Kidney International 2 links

• Home Page
• NephCure Specialists

Centers for Disease Control (CDC) 1 link

• Kidney Disease Surveillance System

Healthy People 2030 1 link

• Chronic Kidney Disease

United States Renal Data System (USRDS) 10 links

• US Kidney Disease Statistics
• 2023 Interactive Annual Data Report
• 2022 Interactive Annual Data Report
• 2021 Interactive Annual Data Report
• 2020 Interactive Annual Data Report
• US Renal Data System 2023
• US Renal Data System 2022
• US Renal Data System 2021
• US Renal Data System 2020
• US Renal Data System 2019

Biorespository Webinar April 18, 2024 6 links

• Recorded Presentation (4/18/24)
• Slides of Biorepsoitory Presentation (4/18/24)
• Resources Shared By Dr. Parikh on Biorepositories
• Human Kidney Biopsy Guidelines (Physiological Genomics)
• Preparation of Deceased Kidney Tissue (HuBMAP)
• Preparation of Surgical Kidney Tissue (HuBMAP)

• Council of Medical Specialties Societies programs
• Hidden in Plain Sight – Reconsidering the Use of Race Correction in Clinical Algorithms (NEJM)
• The Impact of Health Care Algorithms on Racial and Ethnic Disparities: A Systematic Review
• Impact of Healthcare Algorithms on Racial and Ethnic Disparities in Health and Healthcare
• OPTN Board approves elimination of race-based calculation for transplant candidate listing
• Race, Health Care Algorithms, and Precision Health Equity

Disaster Planning 4 links

• Emergency Water Supply Planning Guide
• Evacuations
• Preparing for an Emergency: Kidney Disease and Food Safety
• Preparing for Emergencies: A Guide for People on Dialysis

Helpful Resource Hubs, Apps, and Websites 5 links

• About the ESRD Emergency Hub
• ESRD Emergency Hub
• FEMA App
• Dialysis Care After a Disaster
• What to Do in an Emergency if You Need Dialysis

Home Dialysis Resources 4 links

• PD Solution Conservation Strategies
• Disaster Planning for PD and Home HD
• Emergency Water Supply Planning Guide
• What to Do in an Emergency if You Need Dialysis

ID Cards for People with Kidney Failure 3 links

• About Kidney Patient Emergency Identification Cards
• Fillable/Printable Kidney Patient ID Card
• Spanish Fillable/Printable Patient ID Card

Climate Change Disasters 4 links

• Are major natural disasters on the rise due to climate change?
• Climate change and disaster management
• Climate and weather-related disasters surge five-fold over 50 years, but early warnings save lives (World Health Organization Report, 2021)
• How can climate change affect natural disasters?

Earthquakes 5 links

• Earthquakes Ready.gov
• Earthquakes CDC
• Disaster preparedness for earthquakes in hemodialysis units in Gyeongju and Pohang, South Korea
• How to Make an Earthquake Emergency Kit California Earthquake Authority
• What emergency supplies do I need for an earthquake? US Geological Survey

Evacuation 1 link

• Ready.gov Evacuation Resources

Extreme Heat 7 links

• Associations Between Ambient Extreme Heat Exposure and Emergency Department Visits Related to Kidney Disease
• Association of Extreme Heat Events With Hospital Admission or Mortality Among Patients With End-Stage Renal Disease
• Extreme Summer Heat: Tips for Dialysis Patients-KCER, PDF Patient Handout
• Heat-Related EMS Activated Surveillance Dashboard
• It's Summertime, Beware of Heat Illness-NKF
• Kidney physiology and pathophysiology during heat stress and the modification by exercise, dehydration, heat acclimation and aging
• Relationship of heat stress with acute kidney disease and chronic kidney disease: A literature review

Hurricanes 10 links

• ASPR TRACIE Hurricane Resources at Your Fingertips (PDF, 37 pages, updated March 2022)
• FDA Hurricanes: Health and Safety
• Impact of a Hurricane on Dialysis Patients: A Case Study
• Important Food Safety Tips for Hurricane Season
• Kidney Community Emergency Response (KCER) Hurricane Resources
• National Hurricane Center
• Ready.gov Hurricanes
• Preparing for a Hurricane or Other Tropical Storm (CDC)
• Stay Safe After a Hurricane or Other Tropical Storm (CDC)
• Safety Information for Health Care Professionals (CDC)

Tornados 4 links

• General information about tornados
• National Weather Service Tornado Safety
• Ready.gov-Severe Weather page
• Ready.gov-Tornadoes page

Wildfires & Air Quality 6 links

• Air Quality Where You Are
• American Red Cross Wildfire Safety
• (ASTHO) Wildfire Smoke: A Guide for Public Health Officials
• FEMA-Be Prepared for a Wildfire (PDF, 2 pages)
• Ready.gov-Wildfires
• Wildfire Incident Information

General Information 9 links

• Adult Vaccine Quiz
• Childhood Vaccine Quiz
• ASN Posters – Promoting Vaccine Confidence in the Pediatric Kidney Community
• Advisory Committee on Immunization Practices (ACIP) Recommendations
• CDC Vaccine Schedules App for Healthcare Providers
• Immunize.Org [formerly the Immunization Action Coalition (IAC)]
• Advisory Committee on Immunization Practices (ACIP) Shared Clinical Decision-Making Recommendations
• August is National Immunization Awareness Month
• National Foundation of Infectious Diseases – National Immunization Awareness Month Resource Round-up

Respiratory Syncytial Virus (RSV) 5 links

• New Drug Prevents RSV in Babies and Toddlers
• Vaccine Information Statement for RSV
• Adult RSV ACIP Vaccine Recommendations
• Use of Nirsevimab for the Prevention of RSV Among Infants and Young Children
• Use of RSV Vaccines in Older Adults

Influenza (Flu) 7 links

• Prevention and Control of Seasonal Influenza with Vaccines 2023-24
• Prevent Seasonal Flu
• Who Needs a Flu Vaccine
• Key Facts About Seasonal Flu Vaccine
• Vaccine Information Statements for the Flu Vaccine
• 2023-2024 CDC Flu Vaccination Recommendations Adopted
• Prevention and Control of Seasonal Influenza with Vaccines- ACIP Recommendations

Coronavirus Disease 2019 (COVID-19) 7 links

• Getting a Flu Vaccine and a COVID-19 Vaccine at the Same Time
• COVID-19 Advisory Committee on Immunization Practices (ACIP) Vaccine Recommendations
• Use of COVID-19 Vaccines in the United States
• ASN CDC COVID-19 Vaccine Posters for Staff and Patients – English
• ASN CDC COVID-19 Vaccine Posters for Staff and Patients – Spanish
• ASN CDC COVID-19 Vaccine Poster for Staff and Patients – Arabic
• Interim Recommendations for Use of Bivalent mRNA COVID-19 Vaccines for Persons Aged ≥6 months – United States, April 2023

Culture of Safety 5 links

• Creating a Culture of Safety: ESRD Toolkit
• Demonstration Project on the Impact of Safety Culture on Infection Control Practices in Hemodialysis
• Patient and Facility Safety in Hemodialysis: Opportunities and Strategies to Develop a Culture of Safety
• Promoting a Safety Culture at Dialysis Centers
• Systematic Literature Review of Safety Culture in Hemodialysis Settings

Leadership and Dialysis 6 links

• History of Leadership in Dialysis: Perspectives From Seasoned Leaders
• Infection Prevention and the Medical Director: Uncharted Territory
• Leading a Dialysis Organization: Role and Responsibilities of the Chief Medical Officer (Nephrologist Leadership in a Dialysis Provider Organization)
• Situational Leadership Model
• Systems Thinking and Leadership-How Nephrologists Can Transform Dialysis Safety to Prevent Infections
• What Leaders Really Do

• Home Dialysis - Fundamentals and Beyond (curated articles on recent advances)
• Home Dialysis Toolkit – Developed by the Forum of ESRD Networks Medical Advisory Council (MAC)
• Effects of a comprehensive predialysis education program on the home dialysis therapies
• Home dialysis: conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference

• Peritoneal Dialysis Prescription and Adequacy in Clinical Practice: Core Curriculum 2023
• International Society for Peritoneal Dialysis practice recommendations: Prescribing high-quality goal-directed peritoneal dialysis
• ISPD peritonitis guideline recommendations: 2022 update on prevention and treatment
• ISPD Catheter-related Infection Recommendations: 2023 Update
• ISPD Lecture series
• Creating and Maintaining Optimal Peritoneal Dialysis Access in the Adult Patient 2019
• Handbook of Peritoneal Dialysis, Second Edition, Steven Guest

• Home Hemodialysis Core Curriculum 2021
• International Society of Hemodialysis Implementing Hemodialysis in the Home
• Intensified home hemodialysis: clinical benefits, risks and target populations

Active Shooter 2 links

• CISA Video On Demand
• List of Resources

Undocumented Immigrants 1 link

• ASN Strategy

American Association of Kidney Patients (AAKP) 2 links

• Home Page
• Emergency Preparedness

American Kidney Fund (AKF) 5 links

• AKF Home Page
• AKF Disaster Relief Grant Program
• Disaster Preparedness for Kidney Patients
• Disaster Preparedness for Renal Professionals
• Preparing for an emergency: What you need to know about kidney disease and food safety (webinar)

Kidney Community Emergency Response (KCER) Coalition 3 links

• KCER Home Page
• KCER Resources for Professionals
• KCER Resources for Patients

National Forum of ESRD Networks 5 links

• Disaster Planning General Information and Helpful Links
• Emergency Preparedness for Dialysis Facilities
• ESRD Emergency Hub
• ESRD Networks Contact Information
• Forum of ESRD Networks Home Page

National Kidney Foundation (NKF) 5 links

• NKF Home Page
• 7 Tips to Protect Your Kidneys Before, During, and After An Emergency
• Emergency Meal Planning for Patients on Dialysis
• Emergency Meal Planning for Diabetic Patients on Dialysis
• Planning for Emergencies - A Guide for People with Kidney Disease

State Emergency Management Agencies 1 link

• Search for Your State

Administration for Strategic Preparedness and Response (ASPR) Technical Resources, Assistance Center and Information Exchange (TRACIE) 3 links

• Topic Collection: Dialysis Centers
• Post Disaster Lessons Learned: Dialysis Patient Management (updated February 2021)
• Regional Contact Information

Centers for Medicare & Medicaid Services (CMS) 9 links

• CMS Recognized Current Emergencies
• Medicare Claims During Public Health Emergencies
• CMS Emergency Preparedness FINAL Rule (March 26, 2021-PDF, 75 pages)
• CMS Emergency Preparedness Rule Guidance for Surveyors
• CMS Emergency Preparedness Rule from Healthcare Ready
• CMS After Action Report and Improvement Plan Template and Instructions (access under downloads, ZIP file, Word documents)
• CMS Emergency Preparedness Acronym & Glossary List
• CMS Emergency Preparedness for Dialysis Facilities-A guide for Chronic Dialysis Facilities (PDF, 143 pages)
• CMS Preparing for Emergencies: A Guide for People on Dialysis (PDF, 38 pages)

Centers for Disease Control and Prevention (CDC) 1 link

• Dialysis Care After a Disaster

Federal Emergency Management Agency (FEMA) 3 links

• FEMA Homepage
• FEMA Regional Map
• FEMA How a Disaster Gets Declared

Food and Drug Administration (FDA) 1 link

• Emergency Preparedness and Response

National Oceanic and Atmospheric Administration 1 link

• National Hurricane Center and Central Pacific Hurricane Center